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Welcome to the Rhode Island Chapter of the American Parkinson Disease Association


Welcome to the website for the Rhode Island Chapter of the American Parkinson Disease Association. Our mission is to "Ease the Burden, To Find A Cure" for the people with Parkinson's Disease and their caregivers in Rhode Island and Southeastern Massachusetts. Our goal is to provide education, support and socialization. Along with educational information found on our website will hold many event, both educational and social during the year and there is something for everyone. Please feel free to call: 401-736-1046 with any questions that maybe of concern to you. You may email us at:   Mthibodeau@kentri.org

Our mailing address is:

American Parkinson Disease Association- Rhode Island Chapter

PO Box 41659

Providence, Rhode Island 02940


The 16th Annual Race Walk & Roll for Parkinson Disease - September 13, 2014


HOPE YOU ALL HAD A GREAT DAY SATURDAY! 

Drum roll please..... $70, 699.26 !!!!!

Our 16th Annual Race, Walk & Roll for Parkinson's Disease was very successful! Over 1000 people in attendance and 55 teams registered. Our RI APDA families and friends raised  $70,699.26 with additional donations still coming in!!!! We will update the team totals and post pictures during this week!

Special thank you to our presenting sponsor Care New England and all our sponsors, teams  families, friends and especially our hard working volunteers! We could not do this with out you!

To see our Race results click here:  http://www.coolrunning.com/results/14/ri/Sep13_RaceWa_set1.shtml

 


2014 Rhode Island "Matching Grant Challenge"


A great opportunity has been presented to RI APDA that will help further our mission to "ease the burden" and we are asking for your help!

We are pleased to announce that an anonymous donor has issued a fundraising challenge to the Rhode Island Chapter APDA. The challenge is for RI APDA to raise $40,000 in 2014 and if achieved, the anonymous donor will contribute another $20,000 for a total campaign amount of $60,000!  This money will remain in Rhode Island and will be earmarked for Patient Care Services. Any donation received during 2014 will be Challenge Grant eligible, I know together we can, with your help, achieve the goal.  No gift is too small.

 


Bob Preston's " 2014 OPTIMISM CAN TAKE YOU ANYWHERE!" campaign


 2014 OPTIMISM CAN TAKE YOU ANYWHERE TOUR!

Raising funds for "Patient Care Services in RI"!

I enjoyed a very successful 33 year career in the insurance industry building a large insurance organization before retiring in 2011, at age 53, the very top of my career, due to the effects of Parkinson's Disease.

The irony:  While retiring early was positively NOT my first choice, I have since discovered that at the same time my day job was ending, I was unwittingly discovering my new life's calling, Supporting PD patients and Funding A Cure!  To learn more....


September 9th- Chapter Board Meeting


The next  meeting of the APDA Rhode Island Chapter will be on on Tuesday, September 9th at 6:30PM. We meet the second Tuesday each month at Kent Hospital in the Doctor's Auditorium on the first floor. This meeting is open to the public and all are welcome.


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September 18th Dinner & Learn at Skipjack's, Foxboro, MA


On Thursday, September 18th, Stacey Murray, NP, Neuro Institue of New England, PC will be the guest speaker at Skipjack's at 226 Patriot's Place in Foxboro, Ma. This program is offered to you by Teva Neuroscience.   Her topic is; "Treatment Updates in Parkinson's Disease".  This dinner lecture will begin at 6:30PM. Both the dinner and presentation is sponsored by Teva NeuroScience. Reservations are required. Please note: Registration is through TEVA at  866-227-9788  ext: 1035649. For more information.....


September 24th- Deep Brain Stimulation- Lunch & Learn


On September 24th, Dr Wael Asaad, MD, PhD and Dr Umer Akbar will be the guest speakers at the Chapel Grille Restaurant, 3000 Chapel View Rd Cranston.  Dr Asaad is an Assistant Professor of Neurosurgery at the Brown Alpert Medical School and the Rhode Island Hospital Faculty. Dr Umer Akbar is a Movement Disorder Specialist at Rhode Island Hospital. Their Topic; "An Overview of DBS" will be followed by a question and answer session.  This educational event is intended for Parkinson's patients considering DBS as a possible treatment option. The luncheon and lecture will begin at 11:30AM. The presentation is sponsored by Medtronic. Reservations are required. To register please see the attached flyer....


October 3rd - Dr Aumentado lectures at the Continental Restaurant in Smithfield


On Friday, October 3rd, Dr Aumentado will be our guest speaker at The Continental Restaurant, at 332 Farnum Pike (Rte 104) in Smithfield.  His Topic will be "Managing Parkinson's Disease". The luncheon and lecture will begin at 12:00PM. The luncheon and the presentation are sponsored by Teva NeuroScience. Reservations are required. Please RSVP to Mary Ellen at 401-736-1046.


November 2 & 3 New England Regional Parkinson's Conference in Mansfield, Ma



New England Regional Parkinson's Conference

Holiday Inn Mansfield, MA

                                 November 2 & 3, 2014

 

This 2 day conference is designed to educate and inspire people with Parkinson's and those who care about them with speakers, workshops,exhibitors, caring and sharing-including a Sunday Evening Social! Click through to see the list of speakers and activities. View the event brochure and register on line!


Summer Schedule


Some of our support groups...have taken some time off for the summer. While others will continue through the summer.

Please call the support group leaders to confirm meeting times and places! That information can be found.....


Summer is Here! Remember to have your yearly skin check!



Summer is here and it is time to remind all our RI APDA members to have a yearly skin check and always reach for the sun screen! People with Parkinson's are at higher risk for Malignant Melanoma. Click through to learn the ABC's of Melanoma and read more about Melanoma .....


Rock Steady Boxing at Fight2Fitness Gym in Pawtucket!


Rock Steady Boxing New England (RSBNE) provides an effective form of physical exercise for people who are living with Parkinson's. RSBNE is an affiliate of Rock Steady Boxing, a non-profit gym in Indianapolis founded in 2006 by former Marion County (Indiana) prosecutor Scott C. Newman who was diagnosed with Parkinon's at age 40.  This new exercise program is now available in Rhode Island at Fight2FitnessGym, 65 Blackstone Ave. Pawtucket, RI. To find out more check them out online at: www.RockSteadyBoxingNE.com or call 401-728-2039. Click through to see their flyer. 


Remembering D Day- June 6, 1944 and our own Don McCarthy


Today as we remember those who hit the beaches of Normandy and saved the world our thoughts are with our friend Don McCarthy. Today, Don is back on that beach remembering friends lost and heroes born. This article written by George Morse for AAA tells some of Don's thoughts as he planned for this memorable trip back to that beach, to that moment in history. All Don's friends at RI APDA wish him safe passage on his journey and we thank him for...his service and our FREEDOM!
http://www.aaahorizons.com/content.cfm?a=2304


Current Research Opportunities


Many members of RI APDA have participated or are currently participating in research studies at varies sites. We will now maintain a list of ongoing research studies that are available for those who are interested. As researchers make us aware of new studies they will be added to our website. For questions about participation.....

New studies at URI!


PD Exercise Instructors- Your help is needed!


In the next few weeks, the Department of Physical Therapy at the University of Connecticut will be sending out a research survey that focuses on gathering information on both a statewide and national level on the structure and intensity of Parkinson's exercise classes available to individuals with Parkinson's in each state. The end goal of our research is to provide an effective representation for each state of the exercise classes available for Parkinson's patients. Therefore, if there are any Parkinson's exercise class instructors who would like to lend assistance in providing more information about their classes in a short survey that will be sent out it would be greatly appreciated. Our goal is to capture the input and feedback from as many Parkinson's exercise class instructors in each state as possible to ensure that each state and region of the United States is equally and effectively represented in the research publication that will result from this research study.

For more information about the study please contact Tim Isselee at the University of Connecticut: tim.isselee@uconn.edu.


Brown Research Study Seeks Participants


Researchers at Brown University are seeking participants to help them learn and better understand how Parkinson's disease affects the brain during motor skill learning. For more information about this study please click through to review their flyer!


Breaking News


This new section on our website will keep you up to date on the latest articles found on the internet regarding Parkinson's disease. Just follow through to the next page and click on the links provided to be taken to articles of interest....


Big Thank You to Brandon Eckles!!


This past Saturday at our Young Onset Support Group we were very happy to meet with Brandon Eckles as he presented this check to our RI Chapter. As his senior project, Brandon held a bowling tournament called, "Pins for Parkinson's" and raised $1880! Clearly Brandon has a kind heart and a talent for fundraising and social media marketing.  RI APDA got to surprise him as well. Thanks to our annonymous donor family's "Matching Grant", Brandon's $1880 donation became... almost $3000! This donation will allow us to continue helping many families in our area. Thank You, Brandon!! To check out the check.....


Dance for our Aging Population- DAP Meets at "The Mills" in Pawtucket


Dance for our Aging Population - DAP now meets at "The Mills" 545 Pawtucket Ave. Pawtucket, RI under the direction of Rachal Balaban, Regional Coordinator for Dance for PD assisted by Brown University students. They meet on Thursdays from 12:30 to 1:45 PM. The class is open to our aging population and designed for people with movement challenges. No experience required, Caregivers are welcome. Classes are free! For more information....


VA to Extend Benefits for Tramatic Brain Injury for those who also have Parkinson's


WASHINGTON – Some Veterans with traumatic brain injury (TBI) who are diagnosed with any of five other ailments will have an easier path to receive additional disability pay under new regulations developed by the Department of Veterans Affairs.The new regulation, which takes effect 30 days from today, impacts some Veterans living with TBI who also have Parkinson's disease, certain types of dementia, depression, unprovoked seizures or certain diseases of the hypothalamus and pituitary glands. To read the full press release.......


Dancing for Parkinson's at the Newport Y


Join us as we explore movement & connect with others creatively & joyfully*

When: Tuesdays at 11 am- 12 pm

Where: Newport Count YMCA                 Fee: $60 for members   $80 for non-members

Register at the Newport County YMCA

Instruction by Rachel Balaban 401.261.7062     Balaban.rachel@gmail.com


Making the Connection Between Brain and Behavior, Second Edition


Dr Joseph Friedman's new book is now available!

"Making the Connection Between Brain and Behavior, Second Edition"

The only complete and up-to-date book addressing the most common behavioral symptoms of Parkinson's Disease (PD), including depression, anxiety, hallucinations, disrupted sleep, and compulsive behavior. For more information....


Join RI APDA Chapter facebook group


   Yes!! Rhode Island APDA has it's own group on Facebook. Use this social networking site to meet others in RI and across the country who have or care about someone with Parkinson's disease.

http://www.facebook.com/#!/groups/119816945170/


Yoga Classes at the Kent Y for Individuals with Movement & Balance Disorders


 

The New and Improved Kent Y now has New & Improved Classes for People with Movement & Balance Disorders. Kent YMCA has Yoga classes with you in mind. For more information....