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Welcome to the Rhode Island Chapter of the American Parkinson Disease Association


Welcome to the website for the Rhode Island Chapter of the American Parkinson Disease Association. Our mission is to "Ease the Burden, To Find A Cure" for the people with Parkinson's Disease and their caregivers in Rhode Island and Southeastern Massachusetts. Our goal is to provide education, support and socialization. Along with educational information found on our website will hold many event, both educational and social during the year and there is something for everyone. Please feel free to call: 401-736-1046 with any questions that maybe of concern to you. You may email us at:   Mthibodeau@kentri.org

Our mailing address is:

American Parkinson Disease Association- Rhode Island Chapter

PO Box 41659

Providence, Rhode Island 02940


17th Annual Optimism Race Walk & Roll for Parkinson Disease - September 12th


17th Annual Optimism 

Race Walk & Roll for Parkinsons

in Honor of  Dr. Leslie Mahler, PhD, CCC-SLP

September 12, 2015

Goddard State Park

Warwick, Rhode Island

Presented by

Our 17th Annual Race, Walk & Roll for Parkinson's Disease Will be held on September 12th at Goddard State Park in Warwick.  Last year over 1200 people  attended and we had 55 teams registered. Our RI APDA families and friends raised  $75,000 !!!

Special thank you to our presenting sponsor Care New England.

We could not do this with out you!

REGISTRATION IS NOW OPEN!!!!

To learn more about this event and how to register please check out our informations under our walk tab at the top of our home page!

 


Support Group Summer Schedule


Some of our support groups...have taken some time off for the summer. While others will continue through the summer.

Please call the support group leaders to confirm meeting times and places! That information can be found under our Support Group Tab at the top of this page!


September 15th - Chapter Board Meeting


The next  meeting of the APDA Rhode Island Chapter will be on on Tuesday, September 15th at 6:30PM. We meet the third Tuesday each month at Kent Hospital in the Westmoreland Conference Room on the first floor. This meeting is open to the public and all are welcome.


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September 26th -Our "Friends & Family PD Support Group" is on the move!


Our "Friends & Family" Caregiver PD Support Group will meet again on September 26th at our new location!.  We will meet the 4th Saturday each month at 10 AM at Atria Senior Living Harborhill 159 Division Street East Greenwich, RI 02818

 For more details about this or any support group please call Mary Ellen at 736-1046.


October 10th - Deep Brain Stimulation Support Group


The Deep Brain Stimulation Support Group will meet on Saturday, October 10th at 10 am at Kent Hospital in the Doctors Auditorium. This will be a general discussion meeting with both those who have had DBS and those who would like to learn more about it. Kim Givens from Medtronic will be in attendance!


RI Rehab Physical Therapy offering Exercise and Aquatic Classes for Parkinson's


RI Rehab Physical therapy is now offering exercise and aquatic classes for people with Parkinson's at their Providence and Warren locations! Please check the flyer for dates and times near you. Please call to register! To review their flyer....


Dance for our Aging Population


Dance for our Aging Population - DAP now meets at Brown University, Ashamu Dance Studio 77 Waterman St Providence, RI. These classes are under the direction of Rachal Balaban, Regional Coordinator for Dance for PD assisted by Brown University students. They meet on Thursdays from 10:30 to 11:45 AM. The class is open to our aging population and designed for people with movement challenges. No experience required, Caregivers are welcome. Classes are free! For more information....


New Study on Fatigue in Parkinson's Recruting Participants


Have you been diagnosed with Parkinson's disease? Do you suffer from fatigue on a daily basis? We are looking for adults diagnosed with Parkinson's disease who suffer from fatigue on a daily basis.
Why:
• To understand how individuals with Parkinson's disease describe their fatigue and how if affects their life.
• To understand how individuals with Parkinson's disease manage their fatigue.
• To understand how fatigue in Parkinson's disease is treated by health care providers.

Fatigue is a common symptom in Parkinson's disease and can have a significant and negative impact on one's life. By sharing your experience, you can assist nurses in better managing fatigue in Parkinson's disease and you may gain insight on your own fatigue. For more information on how to participate in ths study, please check out the attached flyer.


New Study to Evaluate Speech and Swallowing Before and After DBS!


There is a new research study recruiting participants to evaluate speech and swallowing both before and after Deep Brain Stimulation Surgery.  The study will be conducted at the University of Rhode Island Speech and Hearing Centers two locations. You may chose the URI Campus in Kingston or their Independence Square location in Pawtucket. For more information please review their flyer....


Fighting Parkinson's by Tim Bickford


Fighting Parkinson's

By Tim Bickford

As I turned left down a back lane that led to a big old Pawtucket mill with a giant brick smokestack across from a recycle and scrap metal business, I followed the arrows to the back of the mill to the "Fight2Fitness" boxing center. Why would a sixty-five year old retired teacher want to go into boxing? One punch to my kisser and I would be close to rigor mortis!! I'll always remember Mohammed Ali pummeling his opponents with lightning jabs, hooks and uppercuts shouting "What's my name??" Luckily, this was not about receiving punches, but throwing them.

Recent studies have shown that intense exercise in "neurologically vulnerable points " (like my arm and leg tremors) can drastically reduce the symptoms of Parkinson's. The words of my doctor linger in my thoughts—"Parkinson's is a degenerative brain disease with no cure".... (Yet!!)... I was willing to try most anything to fight back........


Rock Steady Boxing at Fight2Fitness Gym in Pawtucket!


Rock Steady Boxing New England (RSBNE) provides an effective form of physical exercise for people who are living with Parkinson's. RSBNE is an affiliate of Rock Steady Boxing, a non-profit gym in Indianapolis founded in 2006 by former Marion County (Indiana) prosecutor Scott C. Newman who was diagnosed with Parkinon's at age 40.  This new exercise program is now available in Rhode Island at Fight2FitnessGym, 65 Blackstone Ave. Pawtucket, RI. To find out more check them out online at: www.RockSteadyBoxingNE.com or call 401-728-2039. Click through to see their flyer. 


Summer is Here! Remember to have your yearly skin check!



Summer is here and it is time to remind all our RI APDA members to have a yearly skin check and always reach for the sun screen! People with Parkinson's are at higher risk for Malignant Melanoma. Click through to learn the ABC's of Melanoma and read more about Melanoma .....


Parkinson's Disease Psychosis by Joseph H. Friedman, MD


If you are the caregiver of someone with Parkinson's disease (PD), you are likely well aware of the common motor symptoms associated with the condition, like tremors. However, you may not be aware that non-motor symptoms (those unrelated to physical movement), such as psychosis, commonly develop as the disease progresses.

To read the full article .....

 


Current Research Opportunities


Many members of RI APDA have participated or are currently participating in research studies at varies sites. We will now maintain a list of ongoing research studies that are available for those who are interested. As researchers make us aware of new studies they will be added to our website. For questions about participation.....

New studies at URI!


Making the Connection Between Brain and Behavior, Second Edition


Dr Joseph Friedman's new book is now available!

"Making the Connection Between Brain and Behavior, Second Edition"

The only complete and up-to-date book addressing the most common behavioral symptoms of Parkinson's Disease (PD), including depression, anxiety, hallucinations, disrupted sleep, and compulsive behavior. For more information....


Join RI APDA Chapter facebook group


   Yes!! Rhode Island APDA has it's own group on Facebook. Use this social networking site to meet others in RI and across the country who have or care about someone with Parkinson's disease.

http://www.facebook.com/#!/groups/119816945170/


Donated Goods or Services


The Rhode Island Chapter of the American Parkinson Disease Association is a non-profit 503 (c).

Before you purchase a large item such as a walker or wheelchair please give us a call. We may have someone who is willing to donate such an item directly to you.

Call our office at 401-736-1046 and we will put you in touch with the families who are donating.

Contributions of goods and services are just as valuable as a monetary donation. They save on costs which allows the Rhode Island Chapter APDA to operate efficiently and use the maximum amount of funds toward our mission to "Ease the Burden, To Find a Cure". Please contact us if you would like more information about contributing goods and/or services to the RI Chapter APDA.  401-736-1046

Items needed:  Office supplies (paper, envelopes, ink),  laptop computer, golf items,  and all home medical devices (walkers, shower chairs, etc.)

For more information about items that are needed or available...