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Personal Stories

The Garden by Noreen Mazzie in Honor of her brother Tim O'Brien


My brother Tim was just “the best”. The best husband, father, brother, policeman, soccer coach, joke teller, uncle, writer and friend. He was witty, charming, handsome, compassionate, entertaining, bright and dedicated. He always had a smile on his face and a twinkle in his eye. Although there were five children in our family, I think we all secretly loved Tim the most.

From the time of his marriage, Tim’s house was the scene of many get-togethers for both family and friends. .....


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The Artistic Hand of PD by Michele Keir


“Parkinson Disease is not inherited.” That’s what I was told at 18 years old when my father died from PD. It was August 1967. L-Dopa wasn’t availiable then. Since then my father’s sister, my sister, brother and I all have gotten PD.

I am Michele Keir, a Rhode Island artist and designer, just diagnosed with Parkinson’s Disease this year.


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Comebacks At Work: Using Conversation to Master Confrontation - A new book by Kathleen Readon


Kathleen is a professor, artist and person with Parkinson’s. She lives in Jamestown, RI with her husband, Chris, co-author of their new book and she goes to the YMCA – West Bay Parkinson’s exercise group on Mondays and Thursdays at 12:30. Kathleen has written several other books, but this one is relevant to most of us whether we work or not, volunteer or just try to get things done each day. Here are some of her thoughts:

No doubt you’ve been put on the spot or cornered in conversation or didn’t quite feel you could say what you wanted to say. Maybe this happened with your doctor, spouse, friend, son or daughter. There just didn’t seem to be a good way to tell them what you were thinking. Then, to make matters worse, you wasted hours— maybe even days—dwelling on the event and rolling it over and over in your mind. Then, suddenly in it came to you. “I should have said....”


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Hanging Around for Parkinson's disease by Doug Pierson


 

 

I was hanging around one day and decided to call about a research study that I had become aware of at the APDA- Young Onset Parkinson's Disease meeting at Kent Hospital. The study is called Robot Assisted Gait Training. It is conducted by Dr Albert Lo, Neurologist at the Providence Veterans' Administration Medical Clinic in conjunction with the Warren Alpert School of Medicine at Brown University. The purpose of the study is to determine if Robot Assisted Gait Training can help those of us with Parkinson's Disease from "freezing" while walking or initiating movement.

 

 


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