Links
| Organization | URL | Description |
|---|---|---|
| AARP | ||
| A Closer Look at Stem Cell Treatments | Information about Stem Cell Treatments for patients, families and physicians |
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| American Parkinson Disease Association | National office of the American Parkinson Disease Association (APDA) (800)223-2732 |
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| APDA National Young Onset Center | APDA National Center for people with young onset Parkinson's Disease (877)223-3801
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| APDA Nebraska Chapter | APDA Nebraska Chapter site, located in Omaha and surrounding areas. |
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| APDA Massachusetts Chapter | APDA Massachusetts Chapter, centered in Boston and with over thirty support groups. |
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| Accessibility in Rhode Island | Accessible Rhode Island's website lists restaurants, museums, cinemas and cultural sites and reports on their accessibility . |
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| Assistive Technology Exchange of New England | A site to help locate and exchange assistive technology |
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| Benefits Check Up | National Council on Aging website enables you to find federal, state and local programs that you might be eligile for and explains how to apply. |
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| Cure PSP | CurePSP - The Society for Progressive Supranuclear Palsy, organization dedicated to providing information and support to PSP and CBD patients, families |
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| Elder Care RI | Rhode Island's most comprehensive site for information on issues related to elder care, particularly, long-term care. |
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| Eldercare Locator | Eldercare Locator helps older adults and their caregivers find local services including health insurance counseling and free or low -cost legal services. |
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| Family Caregiver Alliance | Excellent website for infomation about general caregiving and in particular caring for someone with Dementia Behaviors |
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| First Gov for Seniors | The US Government's one stop shopping site to provide you and your loved ones with better access to government services and benefits. |
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| IETF-International Essential Tremor Foundation | The mission of the IETF is - To provide global educational information, services and support to those affected by ET, and to health care providers, while promoting and funding ET research |
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| Lee Silverman Voice Therapy | Site dedicated to Lee Silverman Voice Therapy for people with Parkinson's disease (888)438-5788 |
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| Lewy Body Dementia Association | Site dedicated to Lewy Body Dementia (404) 935-6444 |
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| Medicare Website | Site dedicated to Medicare issues including low cost medical plan coverage for your zip code. |
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| Medline Plus | MedlinePlus is the National Institutes of Health's Web site for patients and their families and friends. Produced by the National Library of Medicine, it brings you information about diseases, conditions, and wellness issues in language you can understand. MedlinePlus offers reliable, up-to-date health information, anytime, anywhere, for free. |
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| Medtronic Deep Brain Stimulation Surgery | Manufacturer of the Neuro-Stimulator for Deep Brain Stimulation Surgery |
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| National Family Caregiver Association |
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The National Family Caregivers Association educates, supports, empowers and speaks up for the more than 65 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age. NFCA reaches across the boundaries of diagnoses, relationships and life stages to help transform family caregivers' lives by removing barriers to health and well being. |
| Needy Meds | Patient must be uninsured with no other presricption coverage. No telepone helpline. |
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| NIH- Clinical Trials |
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ClinicalTrials.gov is a registry of federally and privately supported clinical trials conducted in the United States and around the world. ClinicalTrials.gov gives you information about a trial's purpose, who may participate, locations, and phone numbers for more details. This information should be used in conjunction with advice from health care professionals. |
| Ocean State Center for Independent Living | The Ocean State Center for Independent Living (OSCIL) provides many services including, but not limited to, advocacy, home modification and assistance with acquisition od assistive technology. |
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| Partnership for Prescription Assistance | Works on the patients behalf with drug companies to provide financial assistance towards the cost of some prescription medications. 1-888-477-2669 |
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| PD Trials | Find up to date information on Parkinson's disease studies |
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| Parkinson's Unity Walk | Visit this site to learn more about the annual Parkinson's Unity Walk in New York City (866) 789-9255 |
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| Patient Advocate Foundation- Co-Pay Relief | Helps with the co-pay cost for patients with insurance. 1-866-512-3861 |
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| Patients Like Me |
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Share your experiences, learn from others, and |
| Prescription Drug Relief | 1-877-482-6033 |
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| Rhode Island Hope- for flood relief | 1-877-854-6202 |
RI Hope- Help Other people in Emergencies- They are a federally funded program established to reach out to Rhode Island residents who have unmet flood-related needs. This program runs through April 2011. |
| RIPAE- RI Pharmaceutical Assistance to the Elderly | The Rhode Island Pharmaceutical Assistance to the Elderly (RIPAE) program provides prescription drug cost assistance to Rhode Island residents 65 and older who meet specific income guidelines and those 55 and older who are disabled. Call 401-462-4000 |
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| RSVP Senior Companion Program | Become a Senior Companion Volunteer or utilize this service. RSVP Programs in Rhode Island WESTBAY RSVP-Warwick |
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| RX Assist | Has information about patient assistance programs and drug discount cards. 401-729-3284
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| RX Outreach | 1-800-769-3880 |
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| Social Security Web Site | Official Social Security Web Site |
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| Together Rx Access- Discount Pharmacy Card |
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The Together Rx Access® Card was created as |
| URI- Pharmacy Outreach | Site provides education about medications and payment assistance along with this hotline below.Hotline: 1-800-215-9001 |
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| We Move | The Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web. |
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| eWebResources LLC | Design and build content-management driven websites |