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Welcome to the APDA Rhode Island website!


We serve the people with Parkinson's Disease and their caregivers in Rhode Island and South Eastern Massachusetts through the Information and Referral Center at Kent Hospital, and a number of support groups across the state. Our goal is to provide education, support and socialization. We hold many events during the year and there is something for everyone.

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Sunday, May 26th LIVE!!!!! Bob Preston's " 2013 OPTIMISM CAN TAKE YOU ANYWHERE!" campaign


 2013 OPTIMISM CAN TAKE YOU ANYWHERE TOUR!

Raising funds for "patient care services in RI"!

Listen to Bob LIVE!! on Cat Country this coming Sunday the 26th at 7:30AM. He is being interviewed by Phil Marlowe on Cat Country WCTK 98.1.  If you want to stream it live, go here:

http://player.liquidcompass.net/WCTKFM

I enjoyed a very successful 33 year career in the insurance industry building a large insurance organization before retiring in 2011, at age 53, the very top of my career, due to the effects of Parkinson's Disease.

The irony:  While retiring early was positively NOT my first choice, I have since discovered that at the same time my day job was ending, I was unwittingly discovering my new life's calling, Supporting PD patients and Funding A Cure!  To learn more....

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Joseph Friedman, MD recipient of the Aronson Chair for Neurodegenerative Disorders


Through The Aronson Chair, Butler Hospital will honor Dr. Stanley M. Aronson, a man so deserving of this honor. While to many he may need no introduction, Dr. Aronson is man who has dedicated his career and life to providing the highest level of innovative care to patients and their families.

The first recipient of The Aronson Chair will be Dr. Joseph H. Friedman, Chief of the Movement Disorders Program at Butler Hospital. Dr. Friedman is a leading expert in Parkinson's disease, and other movement disorder, with a visionary focus on the relationship between the brain and behavior and the impact neurology has on all facets of a patient's quality of life. For more information....

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NEW!!! 2013 Rhode Island "Matching Grant Challenge"


A great opportunity has been presented to RI APDA that will help further our mission to "ease the burden" and we are asking for your help!

We are happy to tell you that last years "Matching Grant Challenge" was so successful that our anonymous donor has given us a new challenge for 2013! Raise $20,000 during 2013 and it will be matched.  All funds raised from this challenge remain with RI APDA to provide "patient care services in RI" !!!

 

A BIG THANK YOU to our anonymous donor and all who will help us reach this new goal! 

To learn how you can help......

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May 30th Dr Gordon lectures at Colonel Blackinton Inn Attleboro


On Thursday May 30th,  Dr Norman Gordon, MD from East Providence will be our guest speaker at The Colonel Blackinton Inn at 203 North Main St in Attleboro, Ma. His Topic; "Managing  Parkinson's Disease".  This luncheon and lecture will begin at 12:00PM. Both the luncheon and presentation is sponsored by Teva NeuroScience. Reservations are required. Please RSVP to Mary Ellen at 401-736-1046.

 

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June 1st- Spring Symposium - Radisson Hotel Providence Airport-Warwick


Save the Date !! Saturday, June 1st, 2013

The 2013 Spring Parkinson's Symposium

At the Radisson Hotel Providence Airport in Warwick, RI

Flyers are going in the mail this week! To check out the schedule of speakers.....

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June 15th - PawSox- Parkinson's Awareness Night


Parkinson's Disease Awareness Night! Saturday, June 15, 2013 Family Fundraiser

We are excited to announce that RI & MA APDA Chapters and Team Dominachin will hold an awareness and fundraising event with the PawSox. We will be selling tickets to attend the  Pawtucket Red Sox vs. the Buffalo Bisons. For more information.....

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June 19th- Chapter Board Meeting- Note Room Change



The next  meeting of the APDA Rhode Island Chapter will be on on Wednesday, June 19th at 6:30PM 

We meet at Kent Hospital in the Doctor's Auditorium on the first floor. This meeting is open to the public and all are welcome

.

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June 18th Dr Gordon lectures at The Johnson & Wales Inn - Seekonk


On Tuesday, June 18th , Dr Norman Gordon, MD from East Providence will be our guest speaker at The Johnson & Wales Inn at 213 Taunton Ave, Seekonk, Ma.  His Topic; "Managing Parkinson's Disease". This luncheon and lecture will begin at 12:00PM. Both the luncheon and presentation is sponsored by Teva NeuroScience. Reservations are required. Please RSVP to Mary Ellen at 401-736-1046.

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June 30th - Golf Tournament in Honor of Robert Peltier at Richmond Country Club


  It is time again for our 6th Annual Golf Tournament in Honor of Bob Peltier at beautiful Richmond Country Club.

Come and join in the fun while raising funds for our Respite Care program!

Sunday, June 30, 2013.  This is a scramble format, check in starts at 12:30pm with a shot gun start at 1:30pm.

 

Following the tourney stay for a Prime Rib Dinner, silent auction and raffles.  

Thank you to our "Hole In One Sponsor": FLOOD AUTO GROUP

For more information.....

 

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July13th- Deep Brain Stimulation Support Group


The Deep Brain Stimulation Support Group will meet on Saturday, July 13th at 10 am at Kent Hospital in the Doctors Auditorium. This will be a general discussion meeting with those who have had DBS and those who would like to learn about it. Michael Hahn from Medtronic will be in attendance!

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Parkinson's Unity Walk Honors Local RI Team- Don's Darlings!!!!


Don's Darlings - A Small Team, From the Smallest State (Since 2005!)

In 2005, the daughters of Don Belt decided to join the Parkinson's Unity Walk in New York City after hearing about it at an APDA Rhode Island meeting. Our dad, who had always said he would work until he was 75, was diagnosed with Parkinson's disease when he was 64 and retired a year later. Dad (and Mom) were great role models for us. They were life-long learners with a strong family AND community connection. We grew up giving back and joining the PUW was just one more step in that process. That first year.....

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Breaking News


This new section on our website will keep you up to date on the latest articles found on the internet regarding Parkinson's disease. Just follow through to the next page and click on the links provided to be taken to articles of interest....

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Tai Chi for Parkinson's at Momentum Fitness in Providence


New Tai Chi Classes beginning in Providence at Momentum Fitness 222 South Water Street, Providence. Classes are ongoing every other Thursday 1:30pm-2:30pm.  The Instructor is Gail Whitsitt-Lynch who has been studying Tai Chi since 1974. To learn more about these Tai Ch classes, instructor Gail and Momemtum Fitness.......

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Join RI APDA Chapter facebook group


   Yes!! Rhode Island APDA has it's own group on Facebook. Use this social networking site to meet others in RI and across the country who have or care about someone with Parkinson's disease.

http://www.facebook.com/#!/groups/119816945170/

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New Book on DBS!


Many of you will remember our very own Dr Kelvin Chou. He left Rhode Island a few years ago but clearly has been very busy. He has just published a complete guide to Deep Brain Stimulation Surgery. Co-Authors include: Dr Patag Patel and Susan Grube, RN

The official title is:

Deep Brain Stimulation Surgery: A New Life for People with Parkinson's, Dystonia and Essential Tremor

I have one copy that is already out on loan but check with me (401-736-1046) and if back I will be happy to send it out again.

In a hurry? You can purchase through Amazon at this link: http://amzn.to/ydlnpm

 

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Yoga and Aquatic Classes at the Kent Y for Individuals with Movement & Balance Disorders


 

The New and Improved Kent Y now has New & Improved Classes for People with Movement & Balance Disorders. Kent YMCA has both Water Exercise  and Yoga classes with you in mind. For more information....

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Dance for PD Video


A recent news story by Dave Iverson features a program called "Dance for PD" which was started in conjunction with the Brooklyn Parkinson Work Group and the Mark Morris Dance Studios in New York City.  RI APDA is proud to be one of the current 14 states that has this program..if fact we have 2 classes per week. One at the Jewish Community Center in Providence and another in South County at the RI Rehabilitation Center. Both are taught by trained dancers Jennifer and Rachel from RI Rehabilitation. Please enjoy the attached video and  if you would like more information please call 401-736-1046.

http://www.facebook.com/l.php?u=http%3A%2F%2Fwww.pbs.org%2Fnewshour%2Fbb%2Fhealth%2Fjuly-dec10%2Fparkinson_12-09.html&h=28a99

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Dance for Parkinson's at the Jewish Community Center-East Side of Providence


 Dance for Parkinson's continues at RIRehab at the  JCC-Jewish Community Center in Providence  Taught by Jennifer Davis, MSPT a classically trained, former professional dancer. This class will utilize rhythmic tempos and incorporate mind, body and emotion in dance sequences designed for people with Parkinsons. For more information....

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Dancing for Parkinson's at the Newport Y


Join us as we explore movement & connect with others creatively & joyfully*

When: Tuesdays at 11 am- 12 pm

Where: Newport Count YMCA                 Fee: $60 for members   $80 for non-members

Register at the Newport County YMCA

Instruction by Rachel Balaban 401.261.7062     Balaban.rachel@gmail.com

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"Welcome to Our World" by Pamela Quinn


Please enjoy this  award winning video created by a dancer/teacher Pamela Quinn who has Parkinsons and teaches a class in Brooklyn. It's a wonderful film and our own dance instructor Rachel Balaban  thought you would be interested in seeing it.

http://www.facebook.com/l.php?u=http%3A%2F%2Fwww.youtube.com%2Fwatch%3Fv%3DjhxtqwHO9Tg%26feature%3Dplayer_profilepage&h=2bac8

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Parkinson's Unity Walk 2012- Slide Show


The RI Chapter "Team Rhode Island" took our annual trip to the Parkinon's Unity Walk this past Saturday. For those of you who could not attend here is a slide show of the day.

http://www.unitywalk.org/videoplay.php?vidid=PUW%202012v5.mp4

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Donated Goods or Services


The Rhode Island Chapter of the American Parkinson Disease Association is a non-profit 503 (c).

Before you purchase a large item such as a walker or wheelchair please give us a call. We may have someone who is willing to donate such an item directly to you.

Call our office at 401-736-1046 and we will put you in touch with the families who are donating.

Contributions of goods and services are just as valuable as a monetary donation. They save on costs which allows the Rhode Island Chapter APDA to operate efficiently and use the maximum amount of funds toward our mission to "Ease the Burden, To Find a Cure". Please contact us if you would like more information about contributing goods and/or services to the RI Chapter APDA.  401-736-1046

Items needed:  Office supplies (paper, envelopes, ink),  laptop computer, golf items,  and all home medical devices (walkers, shower chairs, etc.)

For more information about items that are needed or available...

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Living with Parkinson' Disease Video created by Evan Krueger


It is with great pleasure that we can now bring you a wonderful video directed, filmed and edited by Evan Krueger. "Living with Parkinson's Disease" is a labor of love given  to the Parkinson's community by Evan, Dr Joseph Friedman, and Dr Janet Grace.  They were helped by many members of the Parkinson's community both medical professionals and patients alike.

 

To watch the 30 minute video clink on the link below:

"Living with Parkinson's disease"

http://vimeo.com/14337321

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Visit "RI Young Onset Support Group" Video by Evan Krueger


It is with great pleasure that we can now bring you a wonderful video directed, filmed and edited by Evan Krueger. "RI Young Onset Support Group" is a labor of love given  to the Parkinson's community by Evan, Dr Joseph Friedman, and Dr Janet Grace.  They were helped by many members of the Parkinson's community- in particular the RI APDA-Young Onset Support Group that meets monthly at Kent Hospital in Warwick, RI.

To watch the 30 minute video clink on the link below:

RI APDA Young Onset Support Group

http://vimeo.com/14337218




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Current Research Opportunities


Many members of RI APDA have participated or are currently participating in research studies at varies sites. We will now maintain a list of ongoing research studies that our available for those who are interested. As researchers make us aware of new studies they will be added to our website. For questions about participation.....

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